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SUMMARY

Work closely with the Center for International Blood and Marrow Transplant Research (CIBMTR) Senior Scientific Director, Protocol Team members, and other Research Coordinators and staff to coordinate the daily administrative activities for a new Sickle Cell Disease (SCD) study focused on long-term follow-up of individuals living with SCD who received either hematopoietic stem cell transplant or gene therapy. Provide support to the team to facilitate the achievement of the program's goals.

PRIMARY RESPONSIBILITIES

• Organize and coordinate internal and external meetings, site visits, educational events, and other program-related activities. Coordinate program outreach activities by serving as a liaison with community organizations, advocacy groups (such as Sickle Cell advocacy groups), and partner institutions. Assist with planning and coordination of external engagement opportunities such as podcasts, webinars, and educational seminars.
• Coordinate day-to-day program operations, maintain program timelines, and track milestones and deliverables to ensure timely completion of program activities.
• Develop, maintain, and update program databases, participant records, and other program documentation to ensure data accuracy, organization, and regulatory compliance with institutional, regulatory and study requirements.
• Coordinate research protocol activities by collaborating with partnering institutions, SCD clinical and treatment teams, and study personnel to support compliance and participant follow-up.
• Serve as a primary point of contact and patient advocate by facilitating communication between patients, physicians, researchers and CIBMTR. Support participant recruitment, retention and engagement by addressing questions, providing study information, and promoting a positive research study experience.
• Collaborate on the development, implementation and continuous improvement of educational, marketing, patient-facing, research, and training resources. Support dissemination of findings through abstracts, manuscripts, and reports.
• Collect, track, analyze, and report program and research data; prepare reports, dashboards, and updates for investigators, leadership, sponsors, and other stakeholders.
• Coordinate and support training activities for program participants, clinical partners, research staff, and other stakeholders as appropriate.
• Participate on internal committees and external workgroups that support program initiatives, organizational goals and professional development.
• Perform other duties as assigned.

KNOWLEDGE – SKILLS – ABILITIES

• Knowledge of computers, Microsoft Office, quantitative and (potentially) qualitative research methods, survey development, mathematics, documentation, and records management.
• Organization, time management, interpersonal, communication, and problem-solving skills.
• Experience working with individuals living with sickle cell disease or other chronic conditions and demonstrated experience serving as a patient advocate or engaging with patient communities is preferred.
• Knowledge of the challenges faced by individuals and families affected by sickle cell disease is highly desirable.

QUALIFICATIONS

Appropriate experience may be substituted for education on an equivalent basis.

Minimum Required Education: Bachelor's degree

Minimum Required Experience: 2 years

Preferred Experience: Experience with Sickle Cell Disease community (professional or volunteer)

Physical Requirements

Work requires occasionally lifting moderate weight materials, standing, or walking continuously.

WORK ENVIRONMENT

Occasional exposure to dust, noise, temperature changes, or contact with water or other liquids. Work is performed in an environmentally controlled environment.

SENSORY ACUITY

Ability to detect and translate speech or other communication required. May occasionally require the ability to distinguish colors and perceive relative distances between objects.

WHY MCW?

• Outstanding Healthcare Coverage, including but not limited to Health, Vision, and Dental. Along with Flexible Spending options
• 403B Retirement Package
• Competitive Vacation and Paid Holidays offered
• Tuition Reimbursement
• Paid Parental Leave
• Employee & Family Assistance Program (EFAP)
• Pet Insurance
• On campus Fitness Facility, offering onsite classes
• Additional discounted rates on items such as: Select cell phone plans, local fitness facilities, Milwaukee recreation and entertainment etc.

For a brief overview of our benefits see: Benefits Overview

For a full list of positions see: MCW Careers

At MCW all of our endeavors, from our internal operations to our interactions with our partners, are driven by our shared organizational values: Caring – Collaborative – Curiosity – Inclusive – Integrity – Respect. We are committed to fostering an inclusive environment that values diversity in backgrounds, experiences, and perspectives through merit-based processes and in alignment with all applicable laws. We believe that embracing human differences is critical to realize our vision of a healthier world, and we recognize that a healthy and thriving community starts from within. Our values define who we are, what we stand for and how we conduct ourselves at MCW. If you believe in embracing individuality and working together according to these principles to improve health for all, then MCW is the place for you. For more information, please visit our institutional website.

MCW as an Equal Opportunity Employer and Commitment to Non-Discrimination:

The Medical College of Wisconsin (MCW) is an Equal Opportunity Employer. We are committed to fostering an inclusive community of outstanding faculty, staff, and students, as well as ensuring equal educational opportunity, employment, and access to services, programs, and activities, without regard to an individual's race, color, national origin, religion, age, disability, sex, gender identity/expression, sexual orientation, marital status, pregnancy, predisposing genetic characteristic, or military status. Employees, students, applicants or other members of the MCW community (including but not limited to vendors, visitors, and guests) may not be subjected to harassment that is prohibited by law or treated adversely or retaliated against based upon a protected characteristic.